Our Fight to Breathe
The podcast aspires to be the go-to platform for the CF community, featuring powerful personal stories, expert insights, and the latest advancements in CF care. Each episode engages individuals in the CF Community to help listeners foster an understanding, celebrate victories, & tackle challenges.
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Resources for the CF Community
CFF Compass
Offers personalized, confidential support with insurance, legal issues, and access to care. Free program run by the CF Foundation.
Visit site →Donate Life America
As a national nonprofit, Donate Life America educates and inspires people to register as organ, eye, and tissue donors. Their mission supports the National Donate Life Registry, empowering individuals to give life after death.
Visit site →Cystic Fibrosis Foundation (CFF)
Leads efforts in CF research, care improvement, and community support. Their mission is to cure CF and help all people with the disease thrive.
Visit site →Emily’s Entourage
Accelerates research for nonsense mutations of CF. Funds science and advocacy to drive change in rare CF communities.
Visit site →Breathe Like a Boss
Empowers people with CF through coaching and mindset tools. Focuses on self-advocacy, resilience, and lifestyle transformation.
Visit site →Salt in My Soul
Memoir by Mallory Smith chronicling life with CF and her drive to live fully. An inspiring story of courage, love, and legacy.
Visit site →Living Breath Foundation
Provides direct aid, wellness grants, and emergency support to the CF community. Also advocates for education and public awareness.
Visit site →Global Genes
A leading rare disease advocacy organization uniting patients and partners. Provides education, support, and tools to help people navigate rare disease journeys.
Visit site →The PRIDE Study
The PRIDE Study is the first large‑scale, long‑term national health study of LGBTQIA+ people that explores how identity affects physical, mental, and social well‑being. Participants complete annual surveys to help inform healthcare providers, policy makers, and community efforts.
Visit site →Boomer Esiason Foundation
Supports the CF community with scholarships, education, and financial aid. Also funds research to improve quality of life for people with CF.
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Supported in part by an Impact Grant from the CF Foundation
